Tag Archives: lupus

Where I Remember the Important Things

Something happened between now and when I left NYC, nearly a year ago. I am not sure of what it was, but I know it was/is destructive. I left NYC not just to see the world and the places I … Continue reading






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Remission, Just a Fools Game, part 3

Part 1 Part 2 After spending a whole day bemoaning the return of unwanted interbody hostilities, where I rejected even the most basic notion of getting out of bed, I used Friday to find some sort of escape for the … Continue reading






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Remission, Just a Fools Game, part 2

Part 1 Like being stuck watching an awful sequel to a movie that you never even wanted to see in the first place, my Lupus is back. I got the news late last Wednesday night. And after five days of … Continue reading






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Remission, Just a Fools Game, part 1

There is a song, that I am sure most of you have heard, by Bonnie Tyler called It’s a Heartache. I feel these lyrics infinitely capture my last week: “It’s a heartache/Nothing but a heartache/Hits you when it’s too late/Hits … Continue reading






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A Leviathan Returns?

Yesterday I restarted my bi-monthly hyperbaric treatments. I was really hoping it would have the restorative powers it often has had in the past. I needed a kick. Only it was not to be. I am either still quite felled … Continue reading






Posted in i want to live, questions | Tagged , , , , , , , | 6 Comments